The address for my blog, Please Leave the Lights On, was inspired by the title of my husband’s book about his amazing journey of recovery from brain surgery to repair what the neurosurgeon referred to as “complicated subdural hematomas”.
On November 13, 2008, at around 2:00am, my husband stood at the foot of our bed feebly attempting to get back into bed. I knew something was off. Although he spoke clearly and was able to get back into bed, something about his body movements just wasn’t right. He reassured me that he was fine and drifted asleep. I sat and watched him in the dark and listened to his every breath. When he awoke, he seemed fine. But I was scared.
I waited until 7:00am to call his cardiologist—the only doctor of my husband’s whose home number I had. And thus began our odyssey into the world of Traumatic Brain Injuries also called TBI. Evidently my husband had some old hematomas and some new ones. At the time of this discovery, his neurosurgeon made quite clear that my husband’s scan showed some of the “worst” hematomas that he had ever seen. Not exactly what a wife wants to hear.
Since his injury, surgery and recovery we have meet hundreds of people who lives have been profoundly changed by various degrees and different types of traumatic brain injuries. It is my goal and hope to share with you in future blogs information about current treatments, clinical studies, research, resources, links to relevant websites, newspaper articles to hopefully help you with your journey or your loved one’s journey with TBI. It’s a scary road to travel on. And you shouldn’t do it alone. There are many resources available and with the incidence of TBI on the rise, more awareness and understanding.
Thank you for reading my first ever blog! If you have any suggestions, comments or would like to share your story, I’d love to hear from you.